[identity profile] corvidophil3.livejournal.com
The title is a pretty good summary, haha. Hi, I haven't been here before two days ago, but I've been, um, having crotch problems for a while. It's kinda long, so I cut it.
Read more... )
[identity profile] elides.livejournal.com
[Back story: 1, 2, 3, 4, 5, 6, 7, 8, 9, 10,
11, 12, 13, 14, 15]

Okay my GF got a sooner appt exactly 6 weeks out and we went. Turns out that while there was a little progress in the first month or so, there has been no further change. :( She was pretty down at this appt and was asking about how many patients have to stay broken, seems about 10% can't be helped. She's starting to think she's one...
Dr Eschenbach put her on a new topical, Protopic (Tacrolimus Ointment .1%) It has a weird little website and was 10x the cost of the other meds, yeah...she's not too thrilled. Dr E said it might hurt to use but to muscle through it if she can. He said to use it once a day at night for a week to get used to it, then twice a day, and scheduled a new appointment for 8 weeks. So far her inner labia are pretty much totally bright red, ouch. But she's sticking with it, she's a trooper. Interesting side effects on the Tacrolimus including potential cancer...
Dr E said the alternative to the Protopic is to come in 1x per week for steroid injections right in the area...he had no medical preference on which she went with so she opted to stay topical and not take the time off work to get shot up in her vagina every week.
Dr E also said that chances are the cause of the VV is gone now, but the skin itself has a "memory" that means the inflammation and redness stick around for a long time. He's trying to treat that. He explained also that surgery is an option but there's no guarantee that she wouldn't end up with swelling and redness over the scar lines where they excised the inflamed tissue in the first place...
so yeah not a great update this time but that's where we are... Please comment, especially with any Tacrolimus experience, she really loves you guys and this comm for supporting us. Thank you.
[identity profile] elides.livejournal.com
[Back story: 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14]

We've seen David Eschenbach twice now. He's very nice, very busy but nice. The first appointment he confirmed vulvar vestibulitis, told my GF to keep up with the Nortriptyline, and prescribed a new topical steroid cream, Clobetasol. That's the same thing my GF uses very successfully for eczema so she had high hopes. Dr. Eschenbach said it could take 3-4 months to see improvements, but the second appointment a month later actually showed some progress, especially on my gf's right side. So she's keeping that up.
Next appointment is scheduled a couple months out but should have been 6 weeks if we can snag another cancelation then she will... It's going pretty okay though!
It's funny, today the first OBGYN called my GF about setting up an appointment for an annual. She called back and gave them a polite reaming about how she won't be going back to that office again because the doctor (referenced in parts 2 and 3 of this story) neglected to diagnose vaginismus, a restrictive hymen, a vaginal canal that really needed manual dilation due to excessively tight/strong musculature, AND vulvar vestibulitis and instead told my GF to see a shrink. What a screw-up. I love when my GF goes off on people, her justified rage is so sexy;)
Thanks all for the support as always!!
[identity profile] elides.livejournal.com
[Back story: 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11]
First off-Thanks SO MUCH to everyone on this community!
My gf kept with the stretching like Cora had described (and like I wrote inthe last update) and it slowly got easier, she moved through the dilators one at a time and eventually got to the biggest one. That big one, we compared, is just barely smaller than me, so she figured when she's comfortable enough using the big one, we can try it with me. Well this week that finally happened and I FIT! :) ALL the way!
I'm too excited, I'm skipping the story:)
The "homework" Cora assigned kept being modified here and there, but my gf reports the best progress like this - 5 minutes of stretching around hte "bottom half of the clock" as described in the last update, then 10 minutes of just sitting with the biggest dilator in place. Nothing moving, no active stretching, just getting used to it being in there and beign relaxed. Then 1-2 mintues of stretching straight down to 6 o'clock, fairly hard, with a finger-sized object. She has a real sore spot there that was explained to be a bundle of nerves which have become 'stuck together', kind of like when you boil pasta without any oil. In pushing at that space, it's supposed ot "separate the noodles" she said, and go from crazy sharp pain to duller pain to nothing. It's not nothing yet, but my GF reports that it's not sharp anymore, and when we finally put our parts together this week, she reported NO PAIN AT ALL.
It's sooooo good. I've never gone this long without sex since I started having it, so it's kind of good for me to go slow with her too. She says it feels pretty weird right now, she wasn't doing anything sexual when she dilated, so now she has to kind of switch tracks from clinical thing-to-accomplish to actually feeling good. It's going well though, we had our second time yesterday and she didn't report any pain, less weirdness, and it was maybe 10 minutes before she started to feel rubbed raw on the inside - which I expected, so no surprise there.
For those wondering, yeah, I thought about having sex with someone else just to get me through. It's been almost two years! But I never did it once, I never betrayed her, and I'm really glad I didn't. :)
ANYWAY, yeah! so I guess that's the last update! Again, THANK YOU to everyone who ever commented or offered advice or support or anything - you've all been wonderful and I'm so glad I can report back with SUCCESS!!
[identity profile] absteidley.livejournal.com
Hey everyone,

I suffered from vulvar vestibulitis, vulvar dysesthesia, interstitial cystitis, and pelvic floor syndrome for several years.  I have now been pain free and living a healthy, normal life for over two years.  I just wanted to post and let you know that this is NOT a life sentence.  I have been there - the shock of the symptoms, the never-ending doctor's visits, the wish for relief, the confusing diagnoses - and my mission is to tell every woman I can that there is definitely hope.  I am a living example of someone who did indeed return to a normal life.  I think it's tough when you look on the internet and see so many negative things and so much misinformation.  I am making it a point to spread positive news about this issue and share something good.  

I have a blog about this, but I wasn't sure if it is rude to add it to a post.  So if you want to talk to me, by all means, please do.  I would like to spread some hope and joy because I know most of you are in very difficult emotional states regarding this medical issue. 

I'm editing this post and adding the blog link in for anyone who wants to check it out!

http://vulvodyniacoach.wordpress.com/

Wishing you the best,

Abigail
[identity profile] inwhitestatic.livejournal.com
I apologize a million times in advance if this has already been discussed, but I couldn't find anything about it. Here goes:

Previously a virgin, my boyfriend and I decided to have sex. I am on birthcontrol plus he used a condom, so there are no worries there. The problem is, when he went to stick it in, it wouldn't fit. o.O

I am a naturally small and thin person, and I'm wondering if maybe my opening isn't big enough to have sex? He got about an inch and a half into me before it hurt too bad for me to let him go in anymore. It felt almost as if it couldn't go in any farther, like my vagina is abnormally small.

I use tampons (even the super ones, when needed) on my period, and I've never had a problem with them. Can anyone help me?

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