Date: 2012-09-20 06:31 pm (UTC)
i have no helpful things to add.

heres a linky for the lj community, i'm not sure how helpful/active its but it may have some info http://vaginismus.livejournal.com/profile

when drs thought i had vaginismus (i didn't i had hymen issues) i found a website called the vaginismus-awareness-network was very informative and there was a dilation method guide on it. but it seems to have been closed and no longer exists.

i have vulvodynia and am currently taking amitriptyline(an antidepressant) to try and treat it. and my pelvic floor muscles also do the weird tense-until-its-painful thing but only a few times a day which i've never actually told a dr about, i thought it must be normal. yeah i'm learning a lot of things that are normal for me others don't have issues with. i don't like using the word 'normal' but i couldn't think of how to word the sentences without it.

could i ask how a physiotherapist helps with vulvodynia? and i've seen a lot of websites mention biofeedback but i haven't found anything that describes exactly what it is and how it would be used/administered (whichever word fits) to help with vulvodynia. i would be very grateful for any info or links. i'm seeing my gp again in about 2 weeks to see what will happen next. i'm in britain so i'm using the nhs and don't even know if there are any physiotherapists that deal with vagina related things that i could see in my area.
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