Jul. 2nd, 2016

[identity profile] purple-solle.livejournal.com
Hi everyone! It's been years since I last posted here, I'm so happy to see that the community is still awesome.

So. I'm 29, I have murderous periods as well as vulvodynia. My period pain (and general malaise) each month is so bad that (a) I can't walk, (b) I can't do anything except screaming and (c) I turn into a truly horrible person.

My really sweet OB/GYN put me on Lynestrenol, which helped for the first couple of months, but now I'm bleeding continuously and not feeling well at all. On top of that, the Lynestrenol increases my vulvodynia to the point where I can't have PIV sex. I also get cramps now whenever I'm sexually aroused. So yeah, this medication is not for me.

I have another appointment with my OB/GYN a month from now. We're going to look at other options. Ideally, I'd like to just get my entire uterus out, but I know the risks associated with that and I'm definitely too young to accidentally enter menopause as a result.

I just wanted to ask if anyone has experience with non-hormonal ways to stop periods. I've heard some things about partial removal of the endometrium, but I'd like to do some more reading about those methods before my appointment, and I hardly know where to start or which websites to trust. I'd also like to do a bit more reading on whether other hormonal therapies also have such a strong effect on vulvodynia. Where do I start?

A bit more information about my body: I'm sterilised with Adiana (plugged tubes). I've been tested for endometriosis and cysts, all negative.
[identity profile] isee23s.livejournal.com
Hey y'all,

My body is acting super strange and I'm starting to get worried. To make matters worse, I'm traveling for work and won't be anywhere near my doctor for about a week.

Basically, I have all the cramps, bloating, and constipation that I've often gotten with my periods. My cervix is in its usual place for bleeding. I've even had a day or two of PMS moods. This charade has been going on for about 4 days. But no blood, not a drop.

Here are some important facts:

-I'm 30.

-I was in chemotherapy which halted my periods from November '14 to April '15. Then after a bout of hot flashes and a healthy hormone panel, they returned at their pre-cancer 28-30 day cycle length. (It was not a reproductive cancer, the chemo shut down my ovaries. It was expected.)

-This March ('16) I started having abnormally short periods, about 20-22 day cycles. I had four of those.

-I got a copper IUD in April, which introduced worse cramps but was otherwise fine. I didn't experience any unusual bleeding or anything (just slightly heavier periods).

-The IUD feels normal and in place to me, as it was at my followup in May.

-When I was in the hospital for chemo, they incidentally found a 3cm cyst on my right ovary. At followup, it had gone away on its own. I have no idea if I usually have cysts or if I was supposed to do anything with that information.

-I'm currently in day *32* of my cycle. My body has been going through all the motions of a period (as mentioned above), but no blood.

-By my estimation (checking cervical position/discharge/etc), I ovulated around day 19-20 of this cycle.

-My blood is still recovering from chemo, and I'm currently at just-below-normal red and white blood cell counts.

-I've had no hot flashes or nausea or weird discharge or anything else I can think of.

-I do have tender nipples, which I haven't had since cancer, but I did before, so it's not unprecedented.

-I am terrified of early menopause.

-Terrified.

-I will see a doctor, but I need support/stories/ideas until then.

Thank you!

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