It is so hard, and so frightening to have a rare condition that co-exists with a common condition. The PCOS on it's own could be sorted very easily, and it would be better for my PTC if it was sorted out once and for all, but as no-one can give a true risk evaluation, or even any real sound advice, it's hard to know just what to do!


I've added you back, and I'll make a locked post that we can discuss it on in the next few days. It's good to find someone to share this with, just a shame someone else is gonig through it!