https://io2012.livejournal.com/ ([identity profile] io2012.livejournal.com) wrote in [community profile] vaginapagina 2011-12-31 03:04 pm (UTC)

In case you aren't already aware of these resources, here they are:

http://www.endo-resolved.com/messageboard.html

http://www.endometriosisassn.org/

http://www.endocenter.org/

http://www.endofound.org/ (especially: http://www.endofound.org/video)

I learned so much about endometriosis when I was scheduled for my laproscopy. Thankfully my issues seemed to be related to an immune reaction to my IUD, and not endometriosis. I do have PCOS, though, and having an immune reaction (similar to mild endometriosis) while having PCOS is a really tough thing to go through.

However, when I was researching the MOST IMPORTANT THING I found was that all laproscopies are not created equal! Many, many surgeons are only familiar with one presentation of endometriosis and miss many implants and adhesions, allowing endo to regrow after the laproscopy. In these cases, relief from laproscopy is only temporary. However, a specialist who removes endo in ALL its forms can offer much longer lasting relief. Many video presentations on the endofound website are based around that theme.

All this to say that just because you have had one laproscopy, doesn't mean that hysterectomy is your only option. In fact, MANY women on the endo resolved board had hysterectomies only to have reoccurance of their symptoms because there is no hard evidence that endo actually comes from the uterus (the tissue LOOKS like uterine lining, but it may in fact be there from birth and only be activated by reproductive hormones during puberty). Good luck - endo is a really tough diagnosis but you can get help!

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