ext_104533 ([identity profile] elegia.livejournal.com) wrote in [community profile] vaginapagina2008-02-20 10:30 pm

UPDATE

Hey all, see my last entry here for reference as to how I got into this mess: http://community.livejournal.com/vaginapagina/12329090.html

I've since been diagnosed with IBS (Irritable Bowel Syndrome), which explains the incredible pain in my stomach & difficulty digesting anything but water. After reading some of the comments to this entry, I began to think it may indeed be a pelvic muscle clenching problem (especially because of extra symptoms, see below), but it hurts so much inside and at the opening of the vagina too. Also, itching of my clit & pubic hair. The itchy discharge continues. As well intense aches which switch from the left to the right side of my vagina.

To make things worse, I've recently also acquired muscle pain in my legs and around my groin. It feels to me as though muscle dysfunction is slowly spreading through my body and taking it over.

Now, here are a few things I've recently been told:

By my smart-ass gynaecologist: you'll just have to wait until it goes away. I've never heard of anyone who had this their whole life. This is from a health professional?! he just seemed to be totally ignored of vestibulitis, vulvodynia, every pain syndrome, and he's supposedly a specialist.
Also: that itching and other non-threatening symptoms could occur because the whole area is aggravated.

By my boyfriend's mum: women's health problem are usually interrelated, if one thing's wrong it puts the whole system out of joint. She recommends acupuncture & some kind of change in diet.

Anyone able to offer any advice, at all? As to whether any of the things above are true, and who I should see next? Should I continue to try so-called specialists in vulvar pain or switch to a dermatologist or physiotherapist?

My GP is hopeless, I need a referral to do anything because I'm doing it through my parents' health insurance.

Mentally, this whole ordeal is really upsetting. I begin to cry almost every time I stop to think about it in detail.
The endless stress of trying to figure out what's wrong with me & if it'll ever go away impacts on my daily life so much, I feel completely alienated from the rest of the human race. I am crying as I write this.

I realise that this may belong in the vvs community, but I'm waiting for membership to be approved, so if any of you can help me I'd really appreciate it.